This is the application for Event Sponsorships from Rare Giving, a program of the EveryLife Foundation for Rare Diseases, for rare disease policy and advocacy related events taking place in 2026.

All organizations selected to receive a 2026 Rare Giving Event sponsorship will need to complete the following:
  • Mid-year check in: Mid-way through 2026, RDLA will host a check-in call with all Event sponsorship awardees. During this call, awardees will share a status update on their event, including successes and challenges they have experienced. This call will allow organizations the opportunity to learn from and connect with each other.
  • Update RDLA on status of event: Once the event your organization received a 2026 Rare Giving sponsorship for concludes, you will be required to complete a survey where you will share your final event outcomes with RDLA, as well as provide feedback on the Rare Giving program.
  • Logo recognition: Your organization will be required to include the EveryLife Foundation for Rare Diseases, logo on materials for the event you receive the Rare Giving sponsorship for.
Please note that your Rare Giving sponsorship application will be received and scored based on the following criteria.
  • Inclusion of rare disease policy/advocacy education
  • Overall strength/purpose of event
  • Overall budget for event
  • Equitable/inclusive practices

Organizations are required to have a 501(c)3 designation to be eligible to apply. Organizations based in the United States and internationally are eligible to apply.

If you have any questions, please email Shannon von Felden, Vice President of Advocacy, at svonfelden@everylifefoundation.org.

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* 1. What is the name of your organization?

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* 2. Street address of organization

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* 3. City

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* 4. State

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* 5. Zip Code

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* 6. Country

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* 7. If your organization's mailing address is different than the addresses listed above, please enter it here.

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* 8. Please indicate if your organization is based outside of the United States.

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* 9. What is your organization's tax ID number? Please note that your organization must be an official 501c(3) to be eligible for this sponsorship. 

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* 10. Name and title of the point of contact for your organization

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* 11. Email for the point of contact for your organization

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* 12. Phone number for the point of contact for you organization (please indicate if mobile, work or personal number)

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* 13. What is the name of the event you are applying for a Rare Giving sponsorship?

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* 14. What is the date of your 2026 event? (Please indicate if the event will take place over multiple days/weeks)

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* 15. Where will your event be held? (Please note if in person, virtual or hybrid)

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* 16. Please enter your event or organization website

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* 17. Number of expected attendees for your event

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* 18. What is the total budget for this event?

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* 19. What amount ($) of sponsorship are you applying for? Please note that the maximum Rare Giving sponsorship is $5,000 per organization.

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* 20. Are other organizations participating in this event? If so, please list them.

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* 21. Which disease communities will be represented at your event?

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* 22. Does your organization and/or event serve historically or systemically underserved communities? If so, please describe how.

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* 23. How do you plan to ensure your event is inclusive of and accessible to as many people within your target audience as possible?

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* 24. What are the objectives for your event?

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* 25. Describe how this event will engage rare disease advocates in public policy and advocacy? Please give as many details as possible.

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* 26. Please provide any other information that you were unable to include in the fields above in this field.

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* 27. Would you like assistance from RDLA to identify a patient community member to speak at your event? If you select "yes", we will follow up with a speaker request form to get a better understanding of the type of speaker you need.

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* 28. RDLA would like to provide materials for your event. If in person, please indicate where the materials should be sent to. If virtual, please indicate the email address to send the e-materials to.

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* 29. Please indicate the deadline for materials to be received by for your event.

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* 30. Does your organization serve limited-English proficiency (LEP) community? If so, what languages are used by your community members?

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* 31. Have you received a Rare Giving Sponsorship in the past? If so, in what year/s?

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