Survey Introduction

Do you have questions about living with and beyond cancer that you would like answered by research? Tell us your questions and help us to improve the lives of people affected by cancer.

Why we need your questions:

More and more people are living with the consequences of cancer and its treatment - what we have termed Living With and Beyond Cancer. A lot of research is looking for new cancer treatments, but there’s not enough research relevant to living with and beyond cancer. We are working on a project to change this. We would like to find out what the priority questions are for research that look at the impact of cancer as well as treatment (during and in the months and years after it has ended) and how to manage these.

Who we want to hear from:

Please complete this survey if you live in the UK, and you
  • were first diagnosed with cancer as an adult (aged 16+), or
  • look after/have looked after someone who was first diagnosed as an adult, or
  • are a health or social care professional or a volunteer working with adults affected by cancer
What we are interested in:

We are looking for questions about how to live as well as possible after a cancer diagnosis: these might relate to communication, care, education, long-term effects, mental health, relationships, family, fertility, work, social life, life style, cancer coming back, side effects, wellbeing, finance, etc. You may have other examples not listed here. We are not, however, looking for questions about cancer treatment to extend life.

To help you, here are some examples of the questions that have been submitted for health conditions other than cancer:
  • Are breathing exercises helpful in controlling asthma?
  • How safe is it for my breast-fed baby if I take antidepressants?
  • What are the most effective ways of supporting carers of people with dementia living at home?
  • What psychological support should be provided for patients in Intensive Care?
You may want to take some time to think about your questions before filling in the survey. You can submit up to 3 questions. Your questions can be written in any order of importance, but should be the most important to you. If your question is related to a particular time period after cancer diagnosis, or a particular group of people, please indicate this.

What will happen to your questions:

This survey collects your unanswered questions about living with and beyond cancer. A second survey will prioritise these questions. This will identify the most important questions for people affected by cancer and people who work with them. We can then work with the research community to start to answer these questions. You can find out more about the project, read FAQs, and sign up to receive updates at www.ncri.org.uk/jla (this will open in a new window).

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