Thank you for your interest in Rare Disease Week. This is an application for a travel reimbursement to defray the cost of attending Rare Disease Week on Capitol Hill in Washington, DC. on Feb 24 – Feb 26, 2026. For more information about Rare Disease Week, please visit www.rareadvocates.org/rdw. Please note that the travel reimbursement application will close on November 8th.

Advocates traveling from VA, MD, DE or WV are eligible to receive $900 in travel reimbursement. Advocates traveling from AK, HI, MT, SD, ND, WY, PR or VI are eligible to receive $1,600. Advocates traveling from anywhere else in the continental U.S are eligible to receive $1,400.

The EveryLife Foundation also has a limited number of $500 caregiver travel reimbursements available for caregivers of a patient needing accommodations to attend. The amount provided will depend on the state traveling you are traveling from. Please note in your application if you are applying for a caregiver travel reimbursement in addition to an advocate travel reimbursement.

The EveryLife Foundation has a limited number of advocate and caregiver travel reimbursements available. Not all applicants will receive a travel reimbursement. You will be notified of the status of your application by December 19, 2025. It is likely that the travel reimbursement will not fully cover all costs associated with meeting travel. If you receive a travel reimbursement, you will still be responsible for booking your own travel and lodging. You will share your receipts with our team and will be reimbursed while in Washington D.C for Rare Disease Week. Travel reimbursement checks are limited to one of each type, Advocate and Caregiver, per household, pending availability.

Please note all travel reimbursement awardees are required to attend the Share Your Story Day from 12:00-5:00 pm ET on Tuesday, February 24th, the Legislative Conference from 9:00am-5:00pm ET on Wednesday, February 25th, as well as participate in meetings with Members of Congress on Thursday, February 26th.

If you have any questions, please email us at RareDiseaseWeek@everylifefoundation.org.

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* 1. First name / nombre

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* 2. Last name / apellido

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* 3. Email address / dirección de correo electrónico

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* 4. Gender / género

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* 5. Phone number / número de teléfono (Formatted as +1-XXX-XXX-XXXX)

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* 6. Permanent U.S address / dirección permanente en EE. UU.

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* 7. What year were you born? / ¿En qué año naciste?

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* 8. Have you ever served on active duty in the US Armed Forces, Military Reserves, or National Guard? / ¿Alguna vez sirvió en servicio activo en las Fuerzas Armadas, Reservas Militares o Guardia Nacional de los Estados Unidos?

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* 9. What is your relation to rare disease? / ¿Cuál es su relación con las enfermedades raras?

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* 10. If you are a rare disease patient, what is your rare disease/disorder affiliation? Or if you are advocating on behalf of a family member or loved one, what is their rare disease/disorder affiliation? / Si usted es un paciente de enfermedades raras, ¿cuál es su afiliación a una enfermedad / trastorno raro? O si está abogando en nombre de un miembro de la familia o un ser querido, ¿cuál es su afiliación a una enfermedad / trastorno raro?

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* 11. In order to develop tools to empower our diverse rare disease community, we are asking our participants to please select the response that best reflects their race and ethnicity. / Con el fin de desarrollar herramientas para empoderar a nuestra diversa comunidad de enfermedades raras, estamos pidiendo a nuestros participantes que seleccionen la respuesta que mejor refleje su raza y etnia.

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* 12. Have you attended Rare Disease Week on Capitol Hill in the past? If so, in what year/years? / ¿Ha asistido a la Semana de Enfermedades Raras en Capitol Hill en el pasado? Si es así, ¿en qué año/años?

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* 13. Is your attendance at Rare Disease Week 2026 dependent on receiving travel reimbursement? / ¿Su asistencia a la Semana de Enfermedades Raras 2025 depende de recibir el reembolso del viaje?

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* 14. Why is rare disease advocacy important to you? / ¿Por qué es importante para usted la defensa de las enfermedades raras?

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* 15. What are you hoping to learn, accomplish, or achieve by attending Rare Disease Week on Capitol Hill? / ¿Qué espera aprender, lograr o lograr al asistir a la Semana de Enfermedades Raras en Capitol Hill?

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* 16. Please select the RDLA and EveryLife programs and events that you participated in during 2025. Please select only those that you attended/participated in. / Seleccione los programas y eventos de RDLA y EveryLife en los que participó durante 2025. Por favor, seleccione sólo aquellos a los que asistió/participó.

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* 17. Do you require a caregiver or companion to travel with you for health reasons in order to attend the event in Washington, D.C? / ¿Necesita que un cuidador o acompañante viaje con usted por razones de salud para asistir al evento en Washington, D.C.?

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* 18. If you answered yes to the above question, is your caregiver interested in receiving a caregiver travel reimbursement? / Si respondió afirmativamente a la pregunta anterior, ¿su cuidador está interesado en recibir un reembolso de viaje para cuidador?

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* 19. Is covering the upfront costs of travel to this event a barrier to your participation? / ¿Cubrir los costos iniciales del viaje a este evento es una barrera para su participación?

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* 20. If you answered yes to the above question, does EveryLife have your permission for a member of our staff to contact you to see if the Foundation can support you in upfront travel costs? / Si respondió afirmativamente a la pregunta anterior, ¿EveryLife tiene su permiso para que un miembro de nuestro personal se comunique con usted para ver si la Fundación puede ayudarlo con los costos iniciales de viaje?

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