Invitation and Participant Information

Invitation
You are invited as a volunteer to complete this research survey exploring the Australian inflammatory bowel disease (IBD) population regarding perspectives on their health status, management options and participation in physical activity.

Participation criteria:
To complete the survey, participants must
- have a formal, medical diagnosis of Crohn’s disease (CD) or ulcerative colitis (UC).
- be receiving healthcare in Australia.
- be aged 18 years or above.

Purpose of the study:
-  Firstly, the study aims to investigate the reported quality of life of Australians with IBD and the factors which contribute to their health-status.
-  Secondly, to evaluate the effectiveness of management strategies provided in Australia by the viewpoint of those living with IBD.
-  Thirdly, the study aims to explore the perspectives on exercise and physical activity from the Australian IBD population and to identify the level of physical activity in which they engage.

Researchers:

Chief Investigator: Principal Supervisor:
Kelly Baker Dr Tegan Hartmann 
PhD Candidate School of Allied Health, Exercise and Sports Sciences
School of Allied Health, Exercise and Sports Sciences Charles Sturt University
Charles Sturt University Phone: (02) 6338 4067
Phone: (02) 6338 4048 Email: thartmann@csu.edu.au
Mobile: 0478 772 325  
Email: kbaker@csu.edu.au Co-Supervisor:
  Professor Frank Marino
  School of Allied Health, Exercise and Sport Sciences
  Charles Sturt University
  Phone: (02) 6338 4268
   Email: fmarino@csu.edu.au
SURVEY OVERVIEW:
The survey will take approximately 10 – 15 minutes to complete. There is a mixture of closed and open questions.  The survey will begin with a disease activity questionnaire, followed by questions to gather demographic and health status information, then questions on perspectives of management strategies and physical activity.  

CONFIDENTIALITY:
The survey responses are strictly anonymous and responses are unidentifiable.  Once submitted responses cannot be withdrawn. It would not be possible to divulge a participant's identify or breach their confidentiality, even if compelled by law.

The responses will be analysed with the intention to be used towards manuscript publications.  If you would like information regarding the project outcomes, please contact the chief investigator Kelly Baker via email: kbaker@csu.edu.au.

Charles Sturt University’s Human Research Ethics Committee has approved this project [Protocol number: H21489].  If you have any complaints or reservations about the ethical conduct of this project, you may contact the Committee through the Governance Officer:
     Presiding Officer
     Human Research Ethics Committee
     Ethics and Compliance Unit
     Charles Sturt University
     Locked Bag 588  NSW  2678.
     Phone: (02) 6933 4213
     Email: ethics@csu.edu.au

Any issues you raise will be treated in confidence and investigated fully and you will be informed of the outcome.
Please click 'Next' below to proceed to the survey.

*Note that by proceeding and answering the survey questions you are giving your consent to participate and for the anonymous data you provide to be used as described above.

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