The Siegel Rare Neuroimmune Association’s Eclipse Fund for research has established The Progress Grant for NMOSD made possible by a research grant from Horizon Therapeutics. The Eclipse Fund in memory of Pauline H. Siegel was established to support and accelerate research that will directly impact the quality of life for the members of our community.

This grant will fund research aimed to improve understanding of neuromyelitis optica spectrum disorder (NMOSD) and positively impact those living with NMOSD, specifically among Asian and African American populations. Research has shown that these groups are disproportionately affected by NMOSD, and SRNA hopes additional research can help the broader NMOSD community understand how to improve diagnosis, treatment and quality of life of people with NMOSD. 

For more details, please click here.

APPLICATION INSTRUCTIONS
  • The deadline for receipt of a completed application is June 30, 2021.
  • For any text attachments for the online application form, use standard size black type no smaller than 11 point; do not use photo reduction.
  • Copies of any preprints, reprints, or other additional materials must be submitted with the application.
  • The application must be submitted accompanied by all supporting documents. Please do not submit your application until you have assembled all references, transcripts and other requested materials.
  • The application cannot be considered for review unless signed by the applicant.
  • The application and all correspondence relating to it must be received by June 30, 2021.
  • If you have any questions about the preparation of your application, please contact Gabrielle deFiebre at gdefiebre@wearesrna.org

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* 1. Name

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* 2. Degree(s)

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* 3. Institution

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* 4. What's the institution's address?

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* 5. What is your contact information?

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* 6. Project Title

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* 7. Principal Location

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* 8. Grant Amount Requested (in USD)

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* 9. Proposed Start Date

Date

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* 10. Length of Study/Research Project/Grant

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* 11. Please check all categories that apply to your proposal.

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* 12. Have you discussed this proposal with staff or Scientific Council members of SRNA?

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* 13. If yes, what is their name?

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* 14. What is the problem your grant request/proposal would address? How does it relate to the better understanding of NMOSD in African American and/or Asian populations and the goals of SRNA?

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* 15. Please also include details on the key personnel, describing the qualifications for this award.

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* 16. Please upload your research plan here. Include all text, figures, and data tables related to the research plan in this section. The individual subsections below may be any length as long as the total for the entire research plan does not exceed the PAGE LIMIT of twelve pages (not including the list of literature references).

Background

Specific Aims/Hypothesis

Preliminary Results (if applicable)

Experimental Design and Methods

Relevance to NMOSD and SRNA's Mission

Facilities Available for Research

Literature References (in AMA format)

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* 17. Include any relevant publications, clinical trial protocols, or recruitment materials and/or assessment instruments.

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* 18. Please upload a detailed budget for the proposal. SRNA requires a detailed budget for all years of the proposed project. The budget should include requested funds and in-kind funds for Personnel, Equipment, Supplies and anything else that is needed for the study. Please use your organizational format for the budget.

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* 19. The applicant institution has the primary responsibility for protecting the rights and welfare of human subjects and for ensuring the humane care and use of animals in all research activities supported by The Siegel Rare Neuroimmune Association and of informing SRNA of all relevant assurances and certifications. If an award is made as a result of this application, it is the responsibility of the grantee or fellow and the Institution to inform SRNA within a reasonable time of any change in the research protocol. A copy of the approval letters signed by the Chairperson of the Institutional Review Board (IRB) and/or the Institutional Animal Use and Care Committee, as appropriate, must accompany any application. Will human subjects be used?

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