Federal Bill Grid Questionnaire

Our federal policy grid and governance principles are designed to ensure that all legislative initiatives we support align with our mission and uphold the policy priorities of Community Congress. By focusing on broad, community-driven priorities and remaining guided by science over politics, we aim to make a meaningful and equitable impact. These guiding principles help shape our advocacy efforts and legislative asks, particularly during critical engagements like Hill Days.

Contact Information

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* 1. Name:

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* 2. Email:

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* 3. Organization Affiliation

Congressional Background:

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* 4. What is the bill number and bill title?

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* 5. Does this bill have a companion bill in the other chamber of Congress?
(For example, if this is a House bill, is there a Senate version, or vice versa?)

Not sure

Yes (please specify)

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* 6. Who are the primary sponsors or authors of the bill?
(These are the lawmakers who introduced the bill and are leading its promotion in Congress)

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* 7. What organizations are currently supporting the bill?
(Consider listing patient advocacy groups, professional associations, or industry partners who have publicly endorsed the bill. This helps us understand the level of support it has from key stakeholders)

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* 8. Has the bill been introduced in previous sessions?
(If this bill has been introduced before, please share when it was introduced and whether it gained any traction, such as hearings, votes, or cosponsors)

Not Sure

Yes (please provide any known detail)

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* 9. Upload Sign-on Letter (if it exists)

Impact of Legislation:

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* 10. What is the problem the bill is trying to solve?
(Briefly describe the specific challenge or gap this legislation aims to address, particularly for the rare disease community)

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* 11. How does it specifically impact rare diseases?
(Explain how this bill would benefit individuals or families affected by rare diseases. If possible, provide examples or data)

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* 12. What is the solution proposed in the bill?
(Describe the key changes, programs, or actions that the bill would implement to address the identified problem)

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* 13. Are there other bills currently introduced in Congress that address similar issues or challenges?
(Please include any relevant information on related legislation in either the House or Senate)

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* 14. What are the arguments against the bill?
(Share any known concerns or criticisms about the bill, whether from other organizations, lawmakers, or public stakeholders. This helps us anticipate challenges)

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* 15. If available, please attach any one-pager for the bill

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* 16. If available, please link a website for the bill

Federal Bill Grid Questionnaire

Question Title

* 1. Name:

Question Title

* 2. Email:

Question Title

* 3. Organization Affiliation

Question Title

* 4. What is the bill number and bill title?

Question Title

* 5. Does this bill have a companion bill in the other chamber of Congress?(For example, if this is a House bill, is there a Senate version, or vice versa?)

Question Title

* 6. Who are the primary sponsors or authors of the bill?(These are the lawmakers who introduced the bill and are leading its promotion in Congress)

Question Title

* 7. What organizations are currently supporting the bill?(Consider listing patient advocacy groups, professional associations, or industry partners who have publicly endorsed the bill. This helps us understand the level of support it has from key stakeholders)

Question Title

* 8. ​Has the bill been introduced in previous sessions?​​​(If this bill has been introduced before, please share when it was introduced and whether it gained any traction, such as hearings, votes, or cosponsors)

Question Title

* 9. Upload Sign-on Letter (if it exists)

Question Title

* 10. What is the problem the bill is trying to solve?(Briefly describe the specific challenge or gap this legislation aims to address, particularly for the rare disease community)

Question Title

* 11. How does it specifically impact rare diseases?(Explain how this bill would benefit individuals or families affected by rare diseases. If possible, provide examples or data)

Question Title

* 12. ​​​​What is the solution proposed in the bill?(Describe the key changes, programs, or actions that the bill would implement to address the identified problem)

Question Title

* 13. Are there other bills currently introduced in Congress that address similar issues or challenges? (Please include any relevant information on related legislation in either the House or Senate)

Question Title

* 14. What are the arguments against the bill?(Share any known concerns or criticisms about the bill, whether from other organizations, lawmakers, or public stakeholders. This helps us anticipate challenges)

Question Title

* 15. If available, please attach any one-pager for the bill

Question Title

* 16. If available, please link a website for the bill

* 5. Does this bill have a companion bill in the other chamber of Congress?
(For example, if this is a House bill, is there a Senate version, or vice versa?)

* 6. Who are the primary sponsors or authors of the bill?
(These are the lawmakers who introduced the bill and are leading its promotion in Congress)

* 7. What organizations are currently supporting the bill?
(Consider listing patient advocacy groups, professional associations, or industry partners who have publicly endorsed the bill. This helps us understand the level of support it has from key stakeholders)

* 8. Has the bill been introduced in previous sessions?
(If this bill has been introduced before, please share when it was introduced and whether it gained any traction, such as hearings, votes, or cosponsors)

* 10. What is the problem the bill is trying to solve?
(Briefly describe the specific challenge or gap this legislation aims to address, particularly for the rare disease community)

* 11. How does it specifically impact rare diseases?
(Explain how this bill would benefit individuals or families affected by rare diseases. If possible, provide examples or data)

* 12. What is the solution proposed in the bill?
(Describe the key changes, programs, or actions that the bill would implement to address the identified problem)

* 13. Are there other bills currently introduced in Congress that address similar issues or challenges?
(Please include any relevant information on related legislation in either the House or Senate)

* 14. What are the arguments against the bill?
(Share any known concerns or criticisms about the bill, whether from other organizations, lawmakers, or public stakeholders. This helps us anticipate challenges)