State Bill Grid Questionnaire

Our state policy grid and governance principles are designed to ensure that all legislative initiatives we support align with our mission and uphold the policy priorities of Community Congress. By focusing on broad, community-driven priorities and remaining guided by science over politics, we aim to make a meaningful and equitable impact.

Contact Information

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* 1. Name:

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* 2. Email:

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* 3. Organization Affiliation

Policy Landscape:

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* 4. Provide a bill number and title, if a bill has been introduced

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* 5. Have any bills been introduced in other states? If so, approximately how many other states?

Not sure

Yes (please specify)

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* 6. What organizations are currently supporting the bill?
(Consider listing patient advocacy groups, professional associations, or industry partners who have publicly endorsed the bill. This helps us understand the level of support it has from key stakeholders)

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* 7. Has the bill been introduced in previous sessions?
(If this bill has been introduced before, please share when it was introduced and whether it gained any traction, and if so, did that happen in multiple states).

Not Sure

Yes (please provide any known detail)

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* 8. Upload Sign-on Letter (if it exists)

Impact of Legislation:

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* 9. What is the problem the bill is trying to solve?
(Briefly describe the specific challenge or gap this legislation aims to address, particularly for the rare disease community)

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* 10. How does it specifically impact rare diseases?
(Explain how this bill would benefit individuals or families affected by rare diseases. If possible, provide examples or data)

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* 11. What is the solution proposed in the bill?
(Describe the key changes, programs, or actions that the bill would implement to address the identified problem)

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* 12. Are there other bills that address similar issues or challenges? If so, how do they differ?

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* 13. What are the arguments against the bill?
(Share any known concerns or criticisms about the bill, whether from other organizations, lawmakers, or public stakeholders. This helps us anticipate challenges)

State Bill Grid Questionnaire

Question Title

* 1. Name:

Question Title

* 2. Email:

Question Title

* 3. Organization Affiliation

Question Title

* 4. Provide a bill number and title, if a bill has been introduced

Question Title

* 5. Have any bills been introduced in other states? If so, approximately how many other states?

Question Title

* 6. What organizations are currently supporting the bill?(Consider listing patient advocacy groups, professional associations, or industry partners who have publicly endorsed the bill. This helps us understand the level of support it has from key stakeholders)

Question Title

* 7. ​Has the bill been introduced in previous sessions?​​​(If this bill has been introduced before, please share when it was introduced and whether it gained any traction, and if so, did that happen in multiple states).

Question Title

* 8. Upload Sign-on Letter (if it exists)

Question Title

* 9. What is the problem the bill is trying to solve?(Briefly describe the specific challenge or gap this legislation aims to address, particularly for the rare disease community)

Question Title

* 10. How does it specifically impact rare diseases?(Explain how this bill would benefit individuals or families affected by rare diseases. If possible, provide examples or data)

Question Title

* 11. ​​​​What is the solution proposed in the bill?(Describe the key changes, programs, or actions that the bill would implement to address the identified problem)

Question Title

* 12. Are there other bills that address similar issues or challenges? If so, how do they differ?

Question Title

* 13. What are the arguments against the bill?(Share any known concerns or criticisms about the bill, whether from other organizations, lawmakers, or public stakeholders. This helps us anticipate challenges)

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* 14. If available, please attach any one-pager for the bill

* 6. What organizations are currently supporting the bill?
(Consider listing patient advocacy groups, professional associations, or industry partners who have publicly endorsed the bill. This helps us understand the level of support it has from key stakeholders)

* 7. Has the bill been introduced in previous sessions?
(If this bill has been introduced before, please share when it was introduced and whether it gained any traction, and if so, did that happen in multiple states).

* 9. What is the problem the bill is trying to solve?
(Briefly describe the specific challenge or gap this legislation aims to address, particularly for the rare disease community)

* 10. How does it specifically impact rare diseases?
(Explain how this bill would benefit individuals or families affected by rare diseases. If possible, provide examples or data)

* 11. What is the solution proposed in the bill?
(Describe the key changes, programs, or actions that the bill would implement to address the identified problem)

* 13. What are the arguments against the bill?
(Share any known concerns or criticisms about the bill, whether from other organizations, lawmakers, or public stakeholders. This helps us anticipate challenges)