The EveryLife Foundation for Rare Diseases and Ultragenyx are excited to announce Rare Family Day 2025, taking place on Saturday, October 11, 2025, in Novato, California. Rare Family Day is a day filled with live music, delicious food, fun games, and more, all aimed at bringing rare families together from around the United States.

Thanks to the incredible support of Ultragenyx, the EveryLife Foundation will provide travel stipends to a select number of families to attend Rare Family Day. This stipend includes working with a travel company to book economy flights ($600 round trip per person) for up to 5 family members, transportation to and from the event venue, hotel accommodations from October 10th to 12th (covering two nights), and a gift card to cover meals during the stay.

If you and your family are interested in applying for a travel stipend and joining us for this memorable day, please take a moment to fill out the interest form below. It is important to note that completing this form does not guarantee a travel stipend. Families will be notified by late July.
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