Let’s show the world what it means to live with a rare disease every day. The good days. The challenging days. And every day in between. Let’s share what it looks like to go beyond. Share your story.

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* 1. Name

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* 2. Email Address

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* 3. Share your story here.

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* 4. Upload an image to help your story go beyond.

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By providing your information and/or uploading images you agree to allow Ultragenyx and its agents to collect the name and email address you provided and to contact you via email using this information in the future. We will only contact you to confirm the information you provided on this webpage. You also agree to allow Ultragenyx and its agents to publish any or all of your response, including any images and written material, on the Ultragenyx website, social media accounts, and/or other internal and external digital channels. Ultragenyx will not sell, rent or otherwise distribute your name or the email address you provided

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* 5. Please check the box below to acknowledge. 

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