About this survey
This survey will help policymakers understand the extra financial and other costs you face because you have a disability. It is being done independently by Indecon Research Economists on behalf of the Department of Employment Affairs and Social Protection.
 
You can contribute to national policy
The survey’s main objective is to give you an opportunity to contribute directly to national policy about any additional costs faced by individuals with disabilities.
 
Survey is voluntary and completely confidential
This survey is completely voluntary and strictly confidential. Each person’s response is valuable and important.

Please excuse the length of the survey. It is designed to make sure policymakers understand all the additional costs you may face. It would be great if you could fill in as much of it as possible.

Who can fill in the survey?
Ideally, we hope that the survey can be completed by you as a person with a disability, but the most important thing is that the answers represent your views and experiences as the person with a disability.

The following people may also complete, or help you to complete, the survey:
  • a carer;
  • personal assistant
  • family member or friend
What kind of questions are asked?
The questions focus on you and not the circumstances of your carer, family member or friend.

A number of questions relate to households, such as the overall household spending. These questions may not be relevant if you are living in a nursing home or residential care, as you would not have this information. If you are living in a nursing home or residential care, please skip any questions which you feel are not relevant.  

We know that people with disabilities often have extra living costs due to their disability. These costs are called a cost of disability. The survey aims to explore both the direct and indirect costs of disability.

Direct costs of disability are goods or services specifically related to your disability.  These are goods and services you need to buy because you have a disability and wouldn’t otherwise need.  Examples could be costs like:

  • a new downstairs bathroom and bedroom, 
  • special disability equipment like a wheelchair, or
  • paying someone to provide care, or
  • home help, or
  • spending on items such as screen readers or hearing aids.
Direct costs of disability also include spending more on everyday goods and services. For example, you may need to spend more on groceries (for a special diet) or transport (taxis instead of busses), or laundry (changing clothes or linens more often).  You may need to buy special versions of products that are more expensive (special shoes, special computer, special armchair).  In these cases, the cost of disability is the extra you need to spend over the cost of regular items, or regular levels of use. 

Indirect costs of disability relate to any loss of income for you or a family carer.  This loss of income comes about should you, or someone who provides care for you, be unable to work, or can only work fewer hours because of a disability or a caring role.  The indirect cost of disability is the difference between what your earnings would be in the absence of a disability, and what your earnings are now. 

There may be more than one individual with a disability in your household. If this is the case, we would ask that a separate form is filled in for each person.

If you have a question, you can get help by ringing the Illness, Disability & Carers Policy team at the Department of Employment Affairs and Social Protection at 01-704 3029 or emailing the survey team in the Department at CODSurvey@welfare.ie.

Alternatively, Indecon would be happy to help and can be contacted via email at:

  • Brian O’Connell - Indecon Economist, at boconnell@indecon.ie
  • Ronnie O’Toole – Indecon Economist at rotoole@indecon.ie
Thank you
Thank you very much for answering the questions in this survey. Your views are very important. We are very conscious of respecting the dignity and privacy of all information we receive, and we will treat all responses as confidential. 

Please note that all responses will go directly to Indecon Research Economists. Indecon will independently evaluate the responses. We will not share individual results with the Department or anyone else.

Indecon will treat all the information you provide with the highest standards of security and confidentiality. We will do this in line with Irish and European Data Protection legislation.

Personal information will be treated in line with the General Data Protection Legislation (EU 2016/679) and the Irish Data Protection Act 2018.

The survey findings will form an important part of Indecon’s report on the costs of disability which will be published by the Department of Employment Affairs and Social Protection.

We would be very grateful if you could submit your response to this survey by the 16th of November.

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