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YOUR INFORMED CONSENT IS REQUIRED: Please provide your consent for us to collect this survey information from you.

You are being asked to participate in a survey about how the current COVID-19 (coronavirus) pandemic is affecting you. This survey is being managed by the International Brain Tumour Alliance (IBTA) and the Society for Neuro-Oncology (SNO) with support from a wide range of country-specific brain tumour charities and not-for-profit organisations around the world (see list below).

 The purpose of this survey is to provide the international brain tumour community with an understanding of how COVID-19 has affected you. We will only use the information you provide here to help understand valuable information about brain tumours and COVID-19.

You are under no obligation to participate in this survey. If you choose to do so, your replies will remain anonymous. In addition to your opinions in response to the survey questions, we will also collect some personal (“demographic”) information about you which will also remain anonymous. 

We respect your trust and desire for personal privacy and will not sell your personal information. Further, we will not share your personal information except on an anonymised basis as set out below.

The survey managers reserve the right to publish in electronic or any other formats (to be determined by the survey managers) the anonymised data collected in this survey. Such publication will include, but is not limited to, websites, newsletters, articles, presentations, journals and social media and will be available as so published including by individual access throughout the world and also in parts of the world where data protection measures are not equivalent to the General Data Protection Regulation (GDPR).
The IBTA is using Survey Monkey as its survey platform for this research. Please see their privacy and protection information on their website at https://www.surveymonkey.com/mp/data-security-and-compliance/ and https://www.surveymonkey.com/mp/privacy/?ut_source=footer

If you have any questions or concerns about this survey, please feel free to contact kathy@theibta.org

By clicking “I agree” below, you are indicating that you have read and understood this consent form and agree to participate in this survey accordingly. Thank you so much for your feedback at this particularly challenging time. We hope that the findings of this survey will help improve the difficult situations experienced by people with brain tumours and their families today and in the months to come.

NOTE: if the patient is a pediatric patient, under 18 years of age, a parent or legal guardian must answer on the patient's behalf.

Question Title

* 1. Please Confirm:

GENERAL INFORMATION

This survey should take approximately fifteen to twenty minutes to complete.
 
Caregivers can assist patients to complete Parts A and B
 
Parts C and D are for caregivers only.
 
If you are the parent of a child with a brain tumour, you (as the parent) must answer these survey questions on your child’s behalf.  When we say “you” in this survey, we are referring to you (the parent) or your child.
 
The deadline for completing this survey is May 7, 2020

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